Quick post.

Roger had a bad day.  Yesterday was poor as well.  Same pain and discomfort and exhaustion.  Today, I think he was also emotionally worn from feeling poorly as well.  And, can you blame him???  On days like today, its my job to try to trouble shoot and, a find a "solution" (though a true solution rarely exists).  Trouble shooting includes: 1) have you taken your meds today?, 2) where are you on your pain patch, time to change?, 3) did you eat? what did you eat?, 4) did you over do it today? , 5) have you tried to walk around a little to see if you system needs to stretch a little?.....and the list goes on. 

He has been sitting upright most of the evening in his "I'm in pain" position at the edge of the sofa or chair, head slumped down toward his chest....not a comfortable lounging position by any means...but for him, it helps him find some sort of peace.  As he shifted around a couple times, I asked him "have you walked around at all??"  Mind you, the wind is whipping outside and temps are dropping.  I'm not suggesting a walk outside, but maybe around the house.  He finally got up and has been padding around the floor, doing laps for about 5 minutes.  Now, about 30 minutes later, he is asleep nestled into the corner of the sofa with 6 pillows and counting! At least he is comfortable.  Or at least he is comfortable for now.    Looks like another night sleeping in the family room.  I've already moved the bucket close to the sofa...just in case he wakes refluxing (such an unsettling moment). I'll be chasing pillows and blankets for myself shortly.

We met with Roger's pain doctor today.  Obviously as evidenced by the last couple posts, Roger hasn't felt all that hot.  He desperately craves feeling good or conversely loathes feeling crappy.  The pain doc has maintained all along, especially now the cancer is in such an advanced phase his job (the pain doc) is to try to make Roger comfortable and as painfree as possible.  So, we continue to monkey around with Roger's meds.  Today's solution is to up the immediate release "break-through" pain medicine as well as provide a new drug which is like an aerosol pain med.   There are so many variables that you really don't want to change too many elements in the equation....you won't know what works or what doesn't work.  So, we focused on the pain-control aspect.  I'll circle back with the doctor about the fog and "the crazy" which Ambien causes. 

So that's it.  I'm totally pooped.  The candle has burned from both ends to virtually nothing.  Time for me to sleep.Offering up my standard apologies for typos, misspelling grammar faux paus, etc.   xxooxx, a