Tuesday, April 10, 2012

Not much for you today.  Yesterday was doctor day.  We met with Dr Birhiray the oncologist.  It was an OK meeting. You know...not good, not bad... just OK.  As is the case with every meeting with Dr B, Roger's blood is drawn and vitals are taken.  Initial blood test results were ok (we didn't have full lab results).  Roger's weight is down again.  Now 136.  For a guy who is 6'2"...that means he's all bones and skin.  Literally all bones and skin.   

The meeting was more just a "how's it going?  how was radiation?  how have you been feeling?" meeting.  So we chatted about the process and how Roger has been feeling.  The exhaustion being the first and most obvious symptom.  Then we discussed Roger's radiation "sunburn".  Roger kept telling the doctor and the various nurses that he looked good with the suntan.  Um, suntan???  He *does* have a lot of color...along with a lot of radiation sunburns.  (his skin is very angry) The appointment concluded with us agreeing to meet again in a month and at that time for Roger to have another MRI from his pelvis to the top of his head.  The hope is that all or at least some of the tumors are gone or are at minimum reduced in size.  Once we have controlled the tumors in the brain, then we will look back at the tumors in his lungs and lymph nodes.  Its all pretty overwhelming. So, as previously mentioned, we try to focus on one day at a time.  After the scan, we will meet with the oncologist and the radiation oncologist to determine how Roger is doing and what if any next steps are appropriate. 

So, we are hoping with each passing week, Roger will get a little more energy and return a little bit more to his old self.  Apparently, radiation takes 4-6 weeks to exit your system.  As for the radiation burns, I've been putting radiation 1st and 2nd degree burn cream on him 3 times a day.  We are finding less bits of hair on the furniture, in bed or in the shower.  Could be because the radiation is slowly being to exit...or could be because my hubby doesn't have that much hair to begin with.  I'll have to dig out one of his old childhood photos.  You will NOT recognize him....he literally, no exaggeration, has a full Afro of curly red hair.  NO EXAGGERATION.

Well, its that time of evening again.  Gotta wake my hubby up and encourage him to make the nightly trek upstairs to bed while avoiding a veritable obstacle course of shoes, socks, and snoozing felines. 

Hope your week is off to a great start.  a & r

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