The days seem to be blending together lately. Same different, different same. And there just doesn't seem to be enough energy physical or brain energy.
Roger is moving slowly these days. He tends to sleep or at least stay in bed dozing until 9:30 - 10:00. That's a magic time to get up, you see because McDonalds only serves breakfast (yep, nastyass McGriddles) until 10:30 on the weekdays. So....if you're gonna want one of those, you gotta get your skinny butt out of bed. Me putting a McGriddle in the oven on warm is simply ggggrrrrooossss. Yesterday, Roger was still in bed at 10:00 so I went upstairs and crawled back into bed and asked him, "so Rip Van Winkle, are you gonna get up today? " The response...nothing initially (this is typical)...so I repeated the question. The response "why, whats the point? " My response, "because if you want McGriddle for breakfast you have a limited window of opportunity and you know those nasty things are NOT good warmed over. And you'll get sheet wrinkles imprinted on your skinny butt if you don't get up soon. " I could see the wheels slowly turn and he slowly got up.
Yesterday was busy with scheduling appointments, moving appointments, working with the boat buyer, etc. Everything has suddenly (maybe not so suddenly) gotten very complicated. Lots of calls to doctors' office. A big bummer about Roger having no voice is my list of calls to make and return doubles. He can't be heard on the phone. So yesterday included calls to EarNoseThroat doctor's office several times, calls to oncologist's office to get presecription for home infused fluids, and then to reschedule an appt with Dr. Birhirray. I now not only make and receive my own calls and I am also Roger's voice so I make and receive calls for him. Hell, I have a hard enough time keeping myself organized and connected....now its time two.
Found out our insurance company will not cover home infusion of fluids. Soooooo, we have to go to the oncology center to get Roger infused. Its a bummer. We don't mind going because we are friends with a lot of the nurses but we don't like to go because 1) more chances of germs....best way to get sick is to go to the hopsital or the doctor's office, 2) its not as convenient as being at home, and 3) its just way more comfy to be home....NOT to mention its much much cheaper for the insurance company for us to infuse at home. I don't pretend to understand insurance companies and really don't now. Save money? not save money? Oh well. We're trying another work around through the nurses in the oncology center to see if we can still try to infuse at home. Will see.
We went to a retirement party for our brother-in-law Alan. Here is a picture from this evening. Pictures include Roger's aunts Jacki, Dottie and Barb and Uncle Dave, Sister Denise, and cousins Tina and Susie. Family is a wonderful thing for laughter and love. It was great to see everyone though Roger pooped out pretty quickly . He is snoozing on the sofa across from me.
We are headed south again this weekend. The boat buyer wants the boat on Wednesday so we have to get all of our belongings off the boat this weekend. Neither of us are big on making the trip but we know we need to. I'll be heading back on Wednesday most likely without Roger to complete the deal with the buyer, go along for the sea trial and try to answer any questions...hopefully they will only ask "where are the towels" beyond that....well, I'm not the fountain of knowledge with the boat. Roger will probably be recovering from the outpatient procedure he is scheduled to have on Tuesday which we hope will help with his voice, improve his ability to swallow and improve his ability to breath. All things very challenged for Roger over the last 3 weeks.
Well, gotta go. More to post but I'm just too worn out. Love and hugs to all, a & r
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