One week down, and starting week number 2 of radiation. The plan is 5 radiation treatments this week and 3-4 next week. The overriding largest side effect has been exhaustion. Roger is tired....a lot. He is slower waking up. Usually naps after having breakfast and then will start waking up late morning. He usually catches a second wind mid-afternoon and then poops out again after dinner. Once the radiation stops, the exhaustion should taper off. It'll be nice to get a little more of Roger back.
His appetite has been decent. Which means for him, eating three small meals and his new favorite food...little ice cream nuggets by Nestle called "Dibs". When we go to the grocery we literally buy 4 bags. He munches through them over the course of 3-4 days. When we go to the River, we have to buy little individual servings at the convenient store. This past weekend we literally spent, over $25 on these little ice cream nuggets (JUST for the weekend). Now, I do have to confess....they are pretty yummy. I'm sure we are screwing up the re-stocking plan for these groceries or convenient stores....because its inevitable that Roger will get tired of this food...and we'll be off in quest of the next, not-good-for-you-but-oh-so-yummy food. Despite eating little bits of ice cream non-stop, Roger's weight is hovering between 138 - 142. Can't seem to get his weight any higher.
He had an energy spurt today which allowed him to feed one of his obsessions....dandelions. I kid you not. He is obsessed with them. So, he spent about 30 - 45 minutes walking around the yard with a garden tool digging out dandelions. Literally. No kidding. And mind you, we still have a patchwork-quilt yard of weeds, violets, dead grass, etc. He just doesn't like them little yellow dandy-lions. He then worked a little on one of the many car-projects. And now....quiet time on the sofa. He would say, "but hey, NO dandelions".
We're trying to work on a couple paper intensive projects: 1) applying for disability benefits, 2) sending receipts to insurance for reimbursement, and 3) taxes. All of which pretty much suck. And they suck on different levels. Applying for disability means we have been literally reliving Roger's health journey all over again. I didn't realize how truly difficult it would be. The application process has taken almost 12 hours and we still aren't done. Its not so much the tedious nature but the emotional nature as I recall each doctor, the dates, the diagnosis and the corresponding heart ache we both felt along the way. Tracking down documentation to support reimbursement by the insurance company sucks because you have to call, usually a couple times, confirm the documentation received (if received) fits the needs of the insurance company, submit them and then track to see if you receive reimbursement. And taxes, well the whole process just sucks.
Our resident ebay expert, Paul will be coming over to help with our on-going ebay sell projects. I'm told we might actually have a sale pending. Wahoo. If nothing else, it will be nice to "check the box" on our list. One thing done.
Tomorrow, radiation and then meeting with the radiation oncologist. We meet with him every week to discuss how Roger is doing. We have a list of questions for him.
So, that's us. The world continues to spin away and we spin with it.
Time to wake my hubby and shuffle him off to bed. g'nite all. a & r
Monday, March 26, 2012
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